The most widely used measure of subjective burden experienced by informal caregivers of people with dementia, chronic illness, or disability. Captures emotional, financial, social, and physical impacts of caregiving. Widely used in gerontology, dementia research, and caregiver intervention trials.
Likert (0–4, never to nearly always); total 0–88
Score ranges: 0–20 little or no burden, 21–40 mild to moderate, 41–60 moderate to severe, 61–88 severe burden. Public domain — freely available. ZBI-12 short form and ZBI-1 single item also available. Widely used in dementia clinical trials as a primary carer outcome measure.
Zarit, S.H., Reever, K.E., & Bach-Peterson, J. (1980). Relatives of the impaired elderly: Correlates of feelings of burden. Gerontologist, 20(6), 649–655.
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